When a parent lands in the hospital unable to speak for themselves, the question of what they would have wanted falls to whoever is standing in the hallway. Advance directives answer it ahead of time: a living will records the treatments your loved one would or would not want, and a health care proxy names the person who can decide for them. Putting both in place while there is still time and calm is one of the most loving things a family can do.

This guide explains the two core advance directives, the medical orders that go further, what happens to a family without them, how the documents actually work when a crisis hits, and how to set them up.

Why Advance Directives Matter Before a Crisis

Advance care planning means deciding in advance the health care you would want if a serious illness or injury left you unable to speak for yourself, and putting those wishes in writing, as the National Library of Medicine's MedlinePlus explains. The point is not paperwork. It is that these documents spare family members from having to guess, and from the conflict that so often erupts between loved ones who each believe they know best, during the worst week of their lives.

If you are caring for an aging parent or spouse, helping them complete these documents while they can still express their wishes is a gift to everyone who will one day have to act on them.

The Two Core Advance Directives

There are two foundational advance directives for health care, and most people need both.

  • A living will. This is a written document stating which medical treatments a person would or would not want to sustain life if they cannot make decisions, for example CPR, a breathing machine, tube or IV feeding, dialysis, or blood transfusions. It speaks for the person when they cannot speak for themselves.
  • A durable power of attorney for health care. Also called a health care proxy, agent, or surrogate, this names a trusted person to make medical decisions on the person's behalf when they are unable to communicate them. A living will cannot anticipate every situation; a named proxy can apply the person's values to whatever actually comes up. When you name a proxy, name one or two backups as well, so someone can still step in if your first choice cannot be reached.

Together they cover both the "what" (the living will's instructions) and the "who" (the proxy who can decide in real time).

Medical Orders for Serious Illness

For someone who is seriously ill or near the end of life, there are additional documents that go a step further than advance directives, because they are medical orders signed by a clinician that providers can act on immediately.

  • A do-not-resuscitate (DNR) order tells providers not to perform CPR if breathing or the heartbeat stops.
  • A do-not-intubate (DNI) order says the person does not want to be placed on a ventilator.
  • A POLST or MOLST form (Portable, or Physician/Medical, Orders for Life-Sustaining Treatment) translates a seriously ill person's wishes into a medical order a clinician signs, so emergency staff can honor it right away.

These medical orders are distinct from advance directives, and they're generally meant for people who are already seriously ill rather than for healthy adults planning ahead.

How Advance Directives Work in Practice

It helps to know how these documents actually operate, because a lot of the worry comes from not knowing. A directive does not take away anyone's voice while they can still use it. Advance directives generally take effect only once the person can no longer make their own health care decisions. For a living will specifically, that determination usually requires two physicians to certify that the person is terminally ill, has an incurable condition, or is permanently unconscious.

At that point, the health care proxy steps in. The proxy is the decision-maker, not a bystander: they speak with the medical team and can consent to or refuse treatments on the person's behalf, guided by what the living will says and by what they know the person would have wanted. For example, if your mother is sedated after surgery and cannot communicate, her proxy is the one the care team turns to about next steps, using her living will as the guide.

One practical point families miss: these documents are not self-executing. Someone has to put them in the providers' hands. Giving copies to the doctors and the hospital ahead of time, rather than searching for them mid-crisis, is what lets them actually be honored.

What Happens Without an Advance Directive

This is the part that makes the stakes concrete. If a person becomes unable to make medical decisions and has not named a proxy, the choice does not simply fall to whoever is closest. State law decides who may speak for them, usually through a default-surrogate order that commonly gives priority to a legal guardian, a spouse, an adult child, or a parent. If no eligible surrogate is available, or family members disagree about what should happen, a court may have to appoint a guardian to make medical decisions, a slower and costlier process that takes the choice out of the family's hands.

Completing an advance directive is how a family keeps that decision where it belongs, with the person and the people they trust, instead of in a courtroom.

A Health Care POA Is Not a Financial POA

One common point of confusion: a durable power of attorney for health care is different from a financial power of attorney. The health care version covers medical decisions; the financial version covers money and property. Many families need both, but they are separate documents, and naming someone to make medical decisions does not give them authority over finances, or the reverse. A financial power of attorney set up early is also what often keeps a family out of court later; our guide to guardianship vs. power of attorney explains which one a parent needs.

Not sure which documents your family needs, or where to find your state's forms? Talk with Brevy and we'll point you in the right direction.

How to Set Up Your Advance Directives

The paperwork is usually simpler than the conversation, so take a breath before you start. A few things worth knowing:

  • They are state-specific. Each state has its own advance-directive forms and its own witnessing or notary rules, so use your own state's official forms, often available free from the state health department or aging agency.
  • A document from another state may not transfer. A living will or durable power of attorney accepted in one state may not be accepted in another, so if your loved one moves or spends part of the year elsewhere, confirm the documents meet each state's requirements.
  • You usually don't need a lawyer. Most state advance-directive forms can be completed without an attorney, though legal advice helps in more complex situations.
  • Name a primary proxy and a backup. Choose the person you trust to decide, then name one or two alternates in case your first choice cannot serve when the moment comes.
  • They take effect only when needed. Advance directives generally apply only when the person is unable to make their own health care decisions, and they can be changed or canceled at any time.
  • Distribute copies. After completing the documents, give copies to the health care proxy, the person's doctors and other providers, and close family, so the right people have them when it matters.

The conversation is often harder than the paperwork. Approach it gently, more than once if needed, framed around making sure the person's own wishes are the ones that get followed.

Free Resources Worth Saving

MedlinePlus: Advance Directives Plain-language guidance on directives and proxies from the National Library of Medicine. medlineplus.gov/advancedirectives.html
Eldercare Locator Connects you to your local Area Agency on Aging, which can point you to your state's official forms. 1-800-677-1116 eldercare.acl.gov
National Family Caregiver Support Program Counseling and caregiver support through your local aging agency as you navigate care decisions. acl.gov
CaringInfo (National Hospice and Palliative Care Organization) Free state-by-state advance-directive forms and instructions in one place. caringinfo.org

FAQ

What is the difference between a living will and a health care power of attorney?

A living will is a written document stating which life-sustaining treatments a person would or would not want if they cannot decide for themselves. A durable power of attorney for health care names a trusted person to make medical decisions on their behalf when they cannot. The living will is the instructions; the proxy is the person who applies them to real situations. Most people benefit from having both.

Do I need a lawyer to create an advance directive?

Usually not. Most states provide advance-directive forms that you can complete without an attorney, often for free through the state health department or aging agency. Legal advice can help in more complex situations, and because the forms and witnessing rules are state-specific, use your own state's official forms.

Can an advance directive be changed later?

Yes. Advance directives generally take effect only when the person is unable to make their own health care decisions, and they can be changed or canceled at any time. If they change, tell the proxy, family, and providers, and replace the old copies.

What is a POLST, and is it the same as a living will?

No. A POLST or MOLST form translates a seriously ill person's wishes into a medical order that a clinician signs, so emergency staff can act on it immediately. It is a medical order, distinct from an advance directive, and it is generally meant for people who are already seriously ill rather than for healthy adults planning ahead.

How do I bring this up with a parent who doesn't want to talk about it?

Start small, and start before there's a crisis. It often helps to frame the conversation around them rather than around dying: the goal is making sure their wishes are the ones that get followed, and that no one in the family is left guessing or arguing later. You may need more than one conversation, and that is normal. Some families find it easier to begin after a relative's illness, a routine doctor's visit, or while updating other paperwork, when the topic feels practical rather than frightening.

Where do I store the documents, and who should have copies?

Keep the originals somewhere accessible, not locked away where no one can reach them in an emergency, and give copies to the health care proxy and any backup, the person's doctors and hospital, and close family, so the right people have them when it matters. It is also worth asking your state health department or aging agency whether it keeps an advance-directive registry where you can file the documents.

Learn More

Planning ahead is one of the kindest things a family can do, and you don't have to navigate it alone. If you want help understanding what documents and decisions fit your family's situation, start with Brevy. We'll stay with you for as long as it takes.

Find personalized help with caregiving and care planning at brevy.com.


The information on Brevy.com is for educational purposes only and is not a substitute for professional legal, financial, or medical advice. Rules vary by state and program and change frequently. Always verify with the relevant agency or a qualified professional. Brevy is not a law firm, financial advisor, or healthcare provider.

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Brevy Care Team

Expert eldercare guidance from Brevy's team of healthcare professionals and researchers.