Many people with Alzheimer's disease wander away from their home or caregiver, which makes dementia wandering one of the scariest risks caregivers face. It can be a serious problem for people who have more advanced dementia.

Take a breath. This is something you can plan for. With a few changes at home and a plan ready before you need it, you can lower the risk and be ready to act quickly if your loved one does get out. This guide covers why dementia wandering happens, how to prevent it, IDs and GPS, safe-return programs, and exactly what to do if someone goes missing.

Why Dementia Wandering Happens

Before you can prevent wandering, it helps to understand it, because the goal is not to lock someone in but to ease what may be driving them to leave. According to the National Institute on Aging (NIA), people with Alzheimer's may wander, pace, and behave in unusual ways, and it is the disease, not the person, that causes these changes.

Besides changes in the brain, NIA lists factors that may cause distressing behaviors: emotions such as sadness, fear, stress, confusion, or anxiety; health-related problems such as pain, lack of sleep, and problems seeing or hearing; other physical issues such as constipation, hunger, or thirst; side effects of new medications; and a noisy or stressful environment. Agitated people may pace a lot or not be able to sleep, and when these problems start or worsen in the late afternoon or early evening, it is called sundowning. NIA cautions that figuring out the cause of a behavior change is not always easy, and advises talking with a health care provider: a doctor can look for physical problems that may cause agitation and, in certain cases, may prescribe medication to ease the symptoms.

Alzheimer's typically progresses in several stages: preclinical, mild (sometimes called early-stage), moderate, and severe (sometimes called late-stage), though symptoms can vary from one person to another. In mild Alzheimer's, a person may seem healthy but has more and more trouble making sense of the world around them. MedlinePlus notes that wandering can be a serious problem for people who have more advanced dementia, so it is worth putting the precautions below in place early rather than waiting for a scare.

Reducing Dementia Wandering Risk at Home

You cannot watch someone every second, so the first line of defense is a home that is harder to leave unnoticed. The National Institute on Aging suggests:

  • Keep doors locked. Consider a keyed deadbolt, or add another lock placed up high or down low on the door. If your loved one can open a lock, you may need a new latch or lock. Keep the key nearby in case of emergency.
  • Use simple signage. Place STOP, DO NOT ENTER, or CLOSED signs on doors.
  • Add an alarm. Install a smart doorbell or alarm that chimes when a door is opened. MedlinePlus similarly suggests alarms on doors and windows that sound if they are opened.
  • Secure the yard and windows. Use fencing and a locked gate, and install safety devices that limit how much windows can be opened.
  • Hide signs of departure. Keep shoes, keys, suitcases, coats, hats, and other signs of departure out of sight.
  • Do not leave them alone. Do not leave a person with Alzheimer's who has a history of wandering unattended.

Pair these changes with the behavior strategies in our guide to managing dementia behaviors. For example, having a daily routine may help people with dementia.

Plan for the Worst Case Before It Happens

NIA notes that even where these changes help prevent wandering, it is also important to have safety measures in place in case the person wanders and gets lost. Put these in place now, while things are calm:

  • ID or a medical bracelet. Make sure your loved one carries some kind of ID or wears a medical bracelet with their name, address, and your phone number.
  • Labeled clothing. If they might remove an ID bracelet, label their clothes with a name and phone number.
  • A recent photograph or video. Keep one current and accessible to help police if your loved one becomes lost.

GPS Trackers and Dementia Safe-Return Programs

Two more tools can help:

  • GPS tracking devices. Many GPS systems are available to track a person's location, and NIA says these can be a good alternative or addition to a medical bracelet. MedlinePlus suggests a GPS device or a cell phone with a GPS locator embedded in it. Because a person might remove an ID bracelet, labeled clothing remains a useful low-tech backup.
  • Safe-return programs. Consider enrolling your loved one in a safe return program, such as the MedicAlert + Alzheimer's Association Safe and Found service. NIA says you can call 800-432-5378 to find the program in your area, and notes that the program is not affiliated with NIA and there may be a charge for the service.

Because there may be a charge, ask about costs when you call, and check what your state's caregiver programs offer.

If Your Loved One Goes Missing

Act immediately rather than waiting to see if your loved one comes back. NIA advises keeping a recent photograph or video of the person to help police if the person becomes lost, and the steps below build on what you prepared:

1
Step 1

Contact the police

and give them the recent photograph or video you have kept ready.

2
Step 2

Check any GPS system

you use for your loved one's location, and contact your safe-return program if you enrolled in one.

3
Step 3

Ask neighbors to help

MedlinePlus suggests asking neighbors to call you or to help the person get home.

NIA also advises letting neighbors and the local police know ahead of time that the person tends to wander.

The NIA's Alzheimer's and related Dementias Education and Referral (ADEAR) Center is at 800-438-4380, and our caregiver programs by state directory lists support where you live.

Worried about wandering? Chat with Brevy's care navigator for a safety plan and to find dementia caregiver support in your state.

Frequently Asked Questions

How do I stop a loved one with dementia from wandering?

Keep doors locked, considering a keyed deadbolt or another lock placed up high or down low; place STOP, DO NOT ENTER, or CLOSED signs on doors; install an alarm or smart doorbell that chimes when a door is opened; and keep shoes, keys, coats, and other signs of departure out of sight. NIA also advises not leaving a person with a history of wandering unattended, and having an ID or medical bracelet, labeled clothing, and a recent photograph ready in case they do get out.

Why do people with dementia wander?

People with Alzheimer's may wander, pace, and behave in unusual ways, and NIA lists factors besides brain changes that may cause distressing behaviors: emotions such as sadness, fear, stress, confusion, or anxiety; health problems such as pain, lack of sleep, or problems seeing or hearing; and physical issues such as constipation, hunger, or thirst. Agitation that starts or worsens in the late afternoon or early evening is called sundowning, and having a daily routine may help.

When does dementia wandering start?

Alzheimer's typically progresses in stages, from mild to moderate to severe, and symptoms can vary from one person to another. A person with mild Alzheimer's may seem healthy but has more and more trouble making sense of the world around them. MedlinePlus notes that wandering can be a serious problem for people with more advanced dementia, so it is wise to put safety measures in place early rather than wait.

How do I find a dementia safe-return program?

NIA suggests considering a safe return program such as the MedicAlert + Alzheimer's Association Safe and Found service. You can call 800-432-5378 to find the program in your area. NIA notes the program is not affiliated with NIA and there may be a charge for the service.

Should I use a GPS tracker for someone with dementia?

Many GPS systems are available to track a person's location, and NIA says they can be a good alternative or addition to a medical bracelet; MedlinePlus mentions a GPS device or a cell phone with a GPS locator embedded in it. Because a person might remove an ID bracelet, NIA suggests also labeling clothes with a name and phone number.

What should I do if my loved one with dementia goes missing?

Contact the police and give them the recent photograph or video you have kept ready, which NIA says can help police if the person becomes lost. Check any GPS system you use, contact your safe-return program if you enrolled in one, and ask neighbors to call you or to help the person get home.

Learn More

Find personalized dementia caregiving support at brevy.com.


The information on Brevy.com is for educational purposes only and is not a substitute for professional legal, financial, or medical advice. Rules vary by state and program and change frequently. Always verify with the relevant agency or a qualified professional. Brevy is not a law firm, financial advisor, or healthcare provider.

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