If you are caring for an aging parent or a spouse in Utah and running low on your own reserves, respite care is a funded break you may be able to get. In Utah it comes mainly through the federal National Family Caregiver Support Program (NFCSP), run locally by Area Agencies on Aging; through Medicaid's Aging Waiver, which covers in-home respite care for a limited number of adults 65 and older who need a nursing facility level of care and meet Medicaid's financial rules; and, for veterans, through the VA.

Caregiving with no breaks wears down even the most devoted family member. Regular respite is not stepping back from the role. It is what makes showing up tomorrow possible.

This guide maps the funded respite care options in Utah for 2026: who qualifies for each, what each one actually pays for, and where to call first.

Why Respite Care Matters

Family caregiver burnout is not a personal failing. It is a predictable response to sustained, high-demand caregiving with no time to recover. Respite is easier to arrange before a crisis forces the issue than after one.

Needing a break does not mean you are failing the person you care for. It is the opposite: a rested caregiver is a safer, more patient one, and respite is how you make the long run possible.

Who Pays for Respite Care in Utah?

Utah families reach funded respite through three main doors: NFCSP services through an area agency on aging, Medicaid's Aging Waiver, and the VA. A fourth program, EPAS, pays for employment support rather than respite. The table below compares them, and the sections that follow explain each in detail.,

Pathway Who Qualifies Financial Test? What It Pays For How to Access
NFCSP services Caregivers of adults 60+, caregivers of a person of any age with Alzheimer's or a related disorder, and some relatives 55+ who live with and are the primary caregiver for a child or an adult 18-59 with a disability; respite for an older adult's caregiver requires the person cared for to be "frail" Not stated in the federal summary; ask your agency Respite, information, counseling, support groups, training, limited supplemental services Your regional Area Agency on Aging (Eldercare Locator)
Aging Waiver Adults 65+ who require a nursing facility level of care; serves a limited number of people Yes (Medicaid financial eligibility) Respite and other waiver services the member is assessed as needing Referral through the Area Agency on Aging
EPAS Working adults with a disability on Utah Medicaid Yes (must be on Utah Medicaid) A personal assistant for help with daily activities in support of keeping a job medicaid.utah.gov/ltc-2/epas
VA respite Enrolled veterans who meet clinical criteria, if the service is available; respite from a community provider also requires VA community care eligibility A copay may depend on service-connected disability status and finances Home Respite Care or Nursing Home Respite Care VA social worker or case manager; VA Caregiver Support Line: 1-855-260-3274

1. NFCSP Services Through Utah's Area Agencies on Aging

If you are not on Medicaid and there is no veteran in the family, this is usually the first door to try.

What it is: The National Family Caregiver Support Program (NFCSP), authorized by Title III-E of the Older Americans Act and administered federally by the Administration for Community Living (ACL), makes grants to states. The services are provided by an area agency on aging, or an entity it contracts with, and must include five categories: information about available services; help getting access to them; individual counseling, support groups and caregiver training; respite care; and supplemental services on a limited basis.

Who qualifies: Adult family members or other informal caregivers of a person 60 or older; caregivers of a person of any age with Alzheimer's disease or a related disorder; older relatives (not parents) age 55 and older caring for a child under 18; and older relatives, including parents, age 55 and older caring for an adult age 18 to 59 with a disability. An older relative caregiver must live with, be the informal provider of in-home and community care to, and be the primary caregiver for the child or adult with a disability. For a child, the relative must be the primary caregiver because the parents are unable or unwilling to serve, and must have a legal relationship to the child, such as custody, adoption or guardianship, or be raising the child informally.

The respite condition: For a family caregiver of an older adult, respite and supplemental services are available only when the person cared for is "frail": unable to perform at least two activities of daily living without substantial human assistance, or, because of a cognitive or other mental impairment, needing substantial supervision because their behavior poses a serious health or safety hazard. Information, access help, counseling, support groups and training carry no such condition.

What to expect: Respite comes through your area agency on aging or a provider it contracts with, so ask your regional agency exactly what respite it can offer before you plan around it.

How to access: Use the Eldercare Locator to reach your regional Area Agency on Aging.

Best for: Utah family caregivers who are not on Medicaid, especially those caring for a frail older adult or a person with dementia.

2. Aging Waiver In-Home Respite

What it is: Utah runs several Medicaid 1915(c) Home and Community-Based Services (HCBS) waivers that fund in-home services, but space in them is limited and may not be available in all areas. For caregiver respite, the one that matters most for older adults is the Aging Waiver, which covers services not generally available to Medicaid members in community settings, such as day treatment programs, lifeline, and in-home respite care. Its listed services include Respite Care Services (which may be provided in long-term care settings), Adult Day Health Services, Homemaker Services and Personal Attendant Services.,

Who qualifies: A person must be 65 or older, require nursing facility level of care, and meet Medicaid's financial eligibility requirements. The waiver serves a limited number of people, and each member can use only the services they are assessed as needing.

Other waivers: The New Choices Waiver serves people age 65 or older, or age 18 through 64 who meet Social Security Administration disability criteria, who need a nursing facility level of care; its primary goal is moving people out of institutional care into a less restrictive community setting, so raise it with the case manager if a family member is moving home from a facility. The Physical Disabilities Waiver serves people 65 or older and people ages 18 to 64 with physical disabilities who meet a nursing facility level of care; additional services it may provide include personal care assistance, consumer training and personal emergency response services, and applications go through the Division of Services for People with Disabilities.

How to access: The referral process begins with your Area Agency on Aging, whose case manager must complete an evaluation of whether the waiver is appropriate. The waiver is administered by Utah's Division of Aging and Adult Services, (801) 538-3910.,

Best for: Families whose loved one is 65 or older, already needs nursing-home-level care, and is on or applying for Utah Medicaid.

3. EPAS for Working Adults with Disabilities

If your loved one has a disability and is still working, EPAS may pay for personal assistance, but it is built around the job, not around giving a caregiver a break.

What it is: Utah Employment-related Personal Assistant Services (EPAS) is a Medicaid service for people with disabilities who work and need personal assistance in order to remain employed. It is a self-directed program: the participant selects and hires their own personal assistant, and Utah Medicaid says personal assistants may only help with daily activities in support of the participant keeping their job.

Who qualifies: The person must have a disability determined by the Social Security Administration or the State Medical Review Board, be receiving Utah Medicaid, be employed in an integrated community setting at minimum wage or more, work at least 40 hours a month or be self-employed, and need personal assistance to keep working.

EPAS and waivers: Being on a 1915(c) waiver does not by itself rule out EPAS. A waiver participant may not receive EPAS when personal care services are provided as part of their covered waiver services.,

Who can be the paid EPAS worker: Utah Medicaid's examples include parents (if the participant is at least 18), family, friends, neighbors, co-workers, and someone hired through an ad. The assistant must be at least 16, with a valid driver's license and automobile liability insurance. The EPAS page says an assistant may not be a legal guardian, naming a spouse or the parent of a minor child, so Medicaid does not pay either one as an EPAS assistant.

How to access: Contact Utah Medicaid at medicaid.utah.gov/ltc-2/epas/ for current enrollment steps.

Best for: Working adults with disabilities who want a trusted friend, or a family member who is not their spouse or legal guardian, as their paid assistant on the job.

4. VA Respite for Veterans

If there is a veteran in your family, the VA runs its own respite programs, separate from Medicaid.

What it is: The U.S. Department of Veterans Affairs (VA) offers respite to give a family caregiver a temporary break. It is delivered as Home Respite Care (a substitute caregiver comes to the veteran's home, or the veteran attends an adult day health care program) or Nursing Home Respite Care (VA pays for the veteran to go to a nursing home, which may be a VA Community Living Center or a community nursing home, while the family is out of town for a few days), which should be scheduled in advance. VA's copay page describes overnight respite and daily respite as each available up to 30 days a calendar year. All enrolled veterans are eligible if they meet the clinical criteria and the service is available, but that is not the whole test: services vary by location, and when a community agency, an adult day health care center, or a nursing home provides the respite, the veteran also has to meet VA community care eligibility.

What it may cost: A copay may be charged based on the veteran's service-connected disability status and financial information, but federal rules set specific exemptions. Under federal rules there is no copay for the first 21 days of extended care services in any 12-month period, and veterans with a compensable service-connected disability, or with annual income below the amount set under 38 U.S.C. 1521(b), are among those exempt. Beyond those days, a non-exempt veteran pays up to $97 a day for institutional respite and $15 a day for non-institutional respite or adult day health care, to the extent the veteran has available resources. To learn the amount, contact the veteran's VA social worker or case manager to complete the Application for Extended Care Services (VA Form 10-10EC), so settle the copay and community care eligibility before you book a multi-week stay.

PCAFC respite: Primary Family Caregivers approved under the Program of Comprehensive Assistance for Family Caregivers (PCAFC) receive at least 30 days of respite care per year as part of the benefit, and a spouse can serve as the Primary Family Caregiver. PCAFC also pays an approved Primary Family Caregiver a monthly stipend, which VA has described as a nontaxable benefit, but VA pays it only once the caregiver is enrolled in direct deposit through the VA customer engagement portal. PCAFC is not open to every veteran: VA lists four requirements that must all be met: a VA disability rating of 70% or higher; discharge from the military or a date of medical discharge; a need for at least 6 months of continuous, in-person personal care; and enrollment in VA health care. Federal regulation adds further conditions that VA assesses when the veteran and caregiver apply together.,

Utah-specific help: The Utah Department of Veterans and Military Affairs (UDVMA) offers free assistance to veterans and their family members with claims, applications, and appeals to the VA, and its Veteran Service Officers are trained and accredited to represent Utah veterans in filing claims, including a claim for a VA pension with the Aid and Attendance allowance, income that can help pay for private respite. Reach the main office at 801-326-2372 to schedule a meeting in person, over the phone, or by video conference. For veterans who need long-term nursing care rather than a short break, UDVMA also oversees four Utah state veterans homes in Salt Lake City, Ogden, Payson, and Ivins; the Salt Lake City and Ogden homes include memory care.,

How to access: Call the VA Caregiver Support Line at 1-855-260-3274, Monday through Friday, 8 a.m. to 8 p.m. Eastern. It is not a crisis line: anyone in crisis should call 988 and press 1, text 838255, or chat at VeteransCrisisLine.net, any hour of any day.

How to Pay for Respite Care in Utah Without Medicaid

If your income is too high for Medicaid, your loved one has no qualifying disability, and there is no veteran in the family, you still have options, but the math changes. Your two realistic levers are NFCSP services from your Area Agency on Aging and private pay.

Utah's 2025 medians from the CareScout Cost of Care Survey 2025 sit above the national figures for care at home or in the community: a non-medical caregiver costs $39 an hour in Utah against $35 nationally, and adult day health care costs $140 a day in Utah against $95 nationally. Utah's residential settings run below the national medians. These are industry-survey medians, not government rates, so confirm current pricing with the specific agency or center.

The practical strategy is to stack the two. Start with your regional Area Agency on Aging and ask what NFCSP respite or other caregiver services it can offer; use whatever you receive to cover a fixed block each week, then fill the rest with private pay only as your budget allows.

How to Get Started in Utah

1
Step 1

Find your regional Area Agency on Aging through the Eldercare Locator

Ask what NFCSP respite and caregiver services it offers, and whether the person you care for meets the "frail" test for respite.

2
Step 2

If your loved one is 65 or older, needs nursing-home-level care and meets Medicaid's financial rules, ask about the Aging Waiver

The referral starts with the Area Agency on Aging. The waiver serves a limited number of people and covers in-home respite care for members assessed as needing it.,

3
Step 3

If your loved one is a working adult with a disability, ask Utah Medicaid about EPAS

Remember that a spouse or other legal guardian cannot be the paid EPAS worker; Utah Medicaid's examples of who can include family, friends and neighbors.

4
Step 4

If your loved one is a veteran, call 1-855-260-3274 on a weekday

The VA Caregiver Support Line offers help, support and referrals for caregivers of veterans in Utah.

Where to Get Help in Utah

These are the main front doors. Start with the first one that fits your situation.

Eldercare Locator A federal service that routes you to the right Utah Area Agency on Aging, the local door to NFCSP caregiver services and Aging Waiver referrals. eldercare.acl.gov
Utah Division of Aging and Adult Services Administers the Aging Waiver, Utah Medicaid's waiver for adults 65 and older that includes respite care. (801) 538-3910
Utah Medicaid Long-Term Care and Waiver Programs Describes each Utah HCBS waiver, its eligibility rules, and where applications are taken. medicaid.utah.gov/medicaid-long-term-care-and-waiver-programs
VA Caregiver Support Line Help, support and referrals for family caregivers of veterans. Not a crisis line: in a crisis, call 988 and press 1. 1-855-260-3274 (Monday to Friday, 8 a.m. to 8 p.m. Eastern) www.caregiver.va.gov
Utah Department of Veterans and Military Affairs (VSOs) Free assistance for veterans and their family members with claims, applications, and appeals to the VA, from trained, accredited Veteran Service Officers. 801-326-2372 veterans.utah.gov/va-claims-assistance
Your next step Ready to start? Find your regional Area Agency on Aging through the Eldercare Locator and ask what respite and caregiver services are available in your area.

Frequently Asked Questions

Does Utah Medicaid cover respite care?

Yes, for some people. The Aging Waiver covers in-home respite care for adults 65 and older who need a nursing facility level of care and meet Medicaid's financial rules, but it serves a limited number of people and covers only services a member is assessed as needing. EPAS is different: it pays a personal assistant to help a working adult with a disability stay employed.,,

Can a spouse be paid for respite care in Utah?

Not through EPAS. The EPAS page says a personal assistant may not be a legal guardian, and names a spouse or the parent of a minor child. Under the VA's PCAFC program, a spouse can serve as the Primary Family Caregiver, but only if the veteran meets VA's requirements, including a VA disability rating of 70% or higher and a need for at least 6 months of continuous, in-person personal care, and VA approves the application., Utah's Aging Waiver can pay a spouse as the personal attendant only for care the state approves as extraordinary care, and routine respite may not be provided while a spouse is the paid attendant. Those conditions come from waiver documents Utah posts, which are not shown to be the current approved edition, and from Utah's caregiver-compensation rule; the current waiver may add requirements, so confirm with your Area Agency on Aging case manager. The New Choices Waiver can likewise pay a spouse for attendant care only as approved extraordinary care. Its 2021 waiver amendment capped a spouse's self-directed attendant care at 40 hours a week. Those rules come from the 2021 amendment and Utah's caregiver-compensation rule; the current waiver may add requirements, so confirm what it allows with the New Choices Waiver case manager.

Is there respite in Utah without Medicaid?

Yes. NFCSP is funded under the Older Americans Act rather than Medicaid, and area agencies on aging provide its services, including respite, to the family caregivers it covers. For a family caregiver of an older adult, respite requires the person cared for to be "frail" under federal law, so ask your regional agency what it offers.

Can a waiver member also get EPAS?

Sometimes. Being on a Utah 1915(c) waiver does not by itself rule out EPAS, but a waiver participant may not receive EPAS when personal care services are provided as part of their covered waiver services.,

Does the VA cover respite care for veterans in Utah?

Yes. Enrolled veterans who meet the clinical criteria can receive Home Respite Care or Nursing Home Respite Care; VA describes overnight and daily respite as each available up to 30 days a calendar year. Respite from a community provider also requires community care eligibility, and a copay may apply unless the veteran is exempt. Primary Family Caregivers under PCAFC receive at least 30 days of respite a year. Call the VA Caregiver Support Line at 1-855-260-3274 on a weekday to start.,

Learn More

Find personalized help navigating respite care options in Utah at brevy.com.


The information on Brevy.com is for educational purposes only and is not a substitute for professional legal, financial, or medical advice. Rules vary by state and program and change frequently. Always verify with the relevant agency or a qualified professional. Brevy is not a law firm, financial advisor, or healthcare provider.

Still have questions?

Brevy answers from this guide and every other guide here, and can check what you qualify for.

BC

Brevy Care Team

Expert eldercare guidance from Brevy's team of healthcare professionals and researchers.