If you're a family caregiver in Massachusetts, caring for an aging parent or a disabled spouse, you may not realize the state will, in many cases, pay you for that work. That single fact changes the math for a lot of families, and almost nobody learns it at the right time.

Caregiving is exhausting, and the benefits system doesn't make it easier. Massachusetts runs its help through two separate doors, and knowing which one you need saves you weeks of phone calls. The first door is MassHealth, the state's Medicaid program, which funds the ways a family member can actually get paid to provide care. The second is the Executive Office of Aging & Independence and your local Aging Services Access Point (ASAP), which handle unpaid-caregiver support: respite, counseling, and a break when you need one.

This guide walks you through both: how to get paid, how to get relief, which programs fit your situation, and who to call first.


How this guide is organized

You probably arrived with one of a few questions. Jump to the one that's keeping you up at night:

  • Can I get paid to care for a family member?
  • How does the PCA program work?
  • How does Adult Foster Care work?
  • How do I get a break (respite)?
  • Who do I actually call?

Can I get paid to care for a family member in Massachusetts?

Often, yes, and you shouldn't feel awkward asking. Caregiving is real work, and Massachusetts has two MassHealth-funded ways to pay for it.

The hard rule to know up front, because it's the one that disappoints people, is about spouses. In both main programs, a husband or wife cannot be the paid caregiver, and neither can a legally responsible relative or the parent of a member who's a minor child. That's a federal Medicaid rule, not a Massachusetts choice. But an adult child, a sibling, a grandchild, a niece or nephew, or an unrelated friend usually can be paid. So the daughter caring for her mother can often get paid; the wife caring for her husband usually can't, though she may still qualify for respite and support through the second system below.,

Which program fits depends on how you provide care. If you come and go and help with daily tasks, the PCA program is usually the match. If you live with the person and provide round-the-clock daily care, Adult Foster Care is built for that.

The MassHealth Personal Care Attendant (PCA) program

The Personal Care Attendant program is what MassHealth calls self-directed care, and the name matters: you, the member, are in charge. You recruit, hire, train, schedule, and supervise your own attendants, and MassHealth pays them for helping with activities of daily living like bathing, dressing, transfers, and eating. A Personal Care Management agency does a functional evaluation to set your approved hours, and a fiscal intermediary handles the payroll so you're not doing tax paperwork at the kitchen table.

Two things make this program a relief for families. It's an entitlement, which means there's no waitlist, so qualifying members aren't stuck waiting months for help. And because you choose your own attendants, you can hire the relatives the rules allow, the adult child or sibling who's already doing the work for free. Remember the spouse rule: your husband or wife can't be your paid PCA.

MassHealth Adult Foster Care and Group Adult Foster Care

Adult Foster Care is for the situation where a caregiver and the person they care for live together. The caregiver provides daily hands-on help with personal care, and a nurse and care manager from an AFC provider agency visit regularly to oversee the care. In return, the caregiver receives a monthly stipend that, under IRS difficulty-of-care rules, is generally tax-free.

The caregiver can be related or unrelated, and you can live in either person's home. Under the program's higher care level, a relative can serve as the paid caregiver, with the same exceptions as everywhere else: not a spouse, not the parent of a minor child, and not another legally responsible relative. Adult Foster Care doesn't pay for room and board, only for the care.

Group Adult Foster Care (GAFC) is the related benefit for MassHealth members 22 and older who live in a qualified group setting like an assisted living residence, where the personal care is provided on-site rather than by a live-in family caregiver.

How do I get a break? Respite and the Family Caregiver Support Program

Sometimes you don't need a paycheck. You need to sleep, go to your own doctor, or just not be on call for an afternoon. That's what respite is for, and asking for it isn't giving up.

The Family Caregiver Support Program is the place to start. It's funded under the federal Older Americans Act and runs through your local Aging Services Access Point, and it gives unpaid caregivers respite care, counseling and support groups, training, and help finding your way to other services. It's not a Medicaid benefit, so you don't need to qualify for MassHealth to use it. It supports caregivers of adults 60 and older, and grandparents and older relatives raising children.

If the person you care for is on MassHealth, the paid programs above also build in clinical oversight that takes some weight off you. But for the everyday question of how to get a few hours back, your ASAP is the door, and our guide to respite care in Massachusetts walks through the forms it can take.

Massachusetts family caregiver support: the two systems at a glance

It helps to see the split clearly. Paid care runs through MassHealth; unpaid support runs through your ASAP.

Paid caregiving (MassHealth) Unpaid-caregiver support (ASAP)
What you get A wage or a tax-free stipend for providing care Respite, counseling, training, referrals
Main programs PCA program; Adult Foster Care / GAFC Family Caregiver Support Program
Who runs it MassHealth Executive Office of Aging & Independence, via your local ASAP
Do you need MassHealth? Yes, the care recipient must be a MassHealth member No
Can a spouse benefit? A spouse can't be the paid caregiver Yes, a spouse caregiver can get respite and support
Where to start MassHealth or a PCM/AFC agency MassOptions, 1-800-243-4636

Who do I call? Massachusetts caregiver resources

MassOptions The free statewide line that connects you to your local Aging Services Access Point (ASAP) and walks you through your options. 1-800-243-4636 www.mass.gov/massoptions
Your local ASAP The regional agency that runs the Family Caregiver Support Program, respite, and options counseling in your area. www.mass.gov/service-details/aging-services-access-points-asaps
MassHealth Customer Service For questions about the Personal Care Attendant program, Adult Foster Care, and eligibility. 1-800-841-2900 www.mass.gov/orgs/masshealth
A PCA Management agency or an AFC provider agency The organizations that actually enroll you and set up the paid programs. www.mass.gov/masshealth-personal-care-attendant-program

Frequently Asked Questions

Can I get paid to take care of my elderly parent in Massachusetts?

Often, yes. If your parent has MassHealth, you can usually be paid as their Personal Care Attendant or, if you live together, as their Adult Foster Care caregiver. Adult children are among the relatives the rules allow. The main people who can't be paid are a spouse, a legally responsible relative, or the parent of a member who's a minor child.

Can I be paid to care for my husband or wife?

Generally no. In both the PCA program and Adult Foster Care, a spouse can't be the paid caregiver. That's a federal Medicaid rule. You can still get real help through the unpaid side: the Family Caregiver Support Program offers respite, counseling, and support through your local ASAP, and it doesn't require MassHealth.

What's the difference between the PCA program and Adult Foster Care?

The PCA program is self-directed: you hire and manage your own attendants who help with daily tasks, and they're paid an hourly wage. Adult Foster Care is for a live-in caregiver who provides daily care in a shared home and receives a tax-free monthly stipend, with nursing oversight from an agency. PCA fits part-time, come-and-go help; AFC fits a full-time, live-together situation.

Is there a waitlist?

The PCA program is an entitlement, so there's no waitlist for members who qualify. Adult Foster Care and the respite programs can vary by agency and by funding, so call early.

Where do I start if I just need a break, not a paycheck?

Call MassOptions at 1-800-243-4636 and ask for your local ASAP and the Family Caregiver Support Program. They can set up respite so you can step away, and they'll help even if the person you care for isn't on MassHealth.

Your next step Not sure which door is yours? Call MassOptions at 1-800-243-4636 and ask for your local ASAP. They will tell you free of charge whether the paid route (a MassHealth PCA or Adult Foster Care) or the respite side fits your situation, and point you to the right agency. Or get a plan built around your family with Brevy.

Learn More

Find personalized help figuring out how to get paid or get respite as a Massachusetts caregiver at brevy.com.


The information on Brevy.com is for educational purposes only and is not a substitute for professional legal, financial, or medical advice. Rules vary by state and program and change frequently. Always verify with the relevant agency or a qualified professional. Brevy is not a law firm, financial advisor, or healthcare provider.

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Brevy Care Team

Expert eldercare guidance from Brevy's team of healthcare professionals and researchers.